Well, the shots I am still getting every couple weeks, I am not afraid of the injections anymore, in fact i greet them with open arms. NO I am not one who likes pain, however I greet them from the temporary pain relief they do give me. I was balanced in my medication program and all was working together nicely, until the morning I woke up looking like the elephant woman. lol. hives and welts every where, YES EVERYWHERE. it was obvious it was my new pain patches, after the dosage had gotten high enough to work, my body decided ” YA I DON’T THINK SO, YOU CAN’T HAVE YOUR CAKE AND EAT IT TOO, YOU CAN NOT HAVE A DAY OR A WEEK OF MINIMAL PAIN, I JUST WONT HAVE IT!. SO back to the beginning as far as pain management goes, i don’t look forward to the next few weeks. But still happy to be in the pain care clinic, seriously the best thing ever, and all you out there suffering from pain, take my advice and seek a pain care clinic near you, i do think you might need a referral. although I didn’t like learning of all my ailments that I wasn’t aware of, i am also relieved to know, IT WAS NOT ALL FIBROMYALGIA LIKE DOCTORS HAVE ALWAYS SAID. ITS MUCH MORE THAN THAT. BUT knowing what other issues underlie I am able to help myself more, now that i have knowledge.
SORRY AGAIN….. that i havent been faithful with the updates re; my new treatment, which by the way.IT DEFINATELY HELPING ME, still have pain, but can function and its way less,UNTILL 2 THE PAST 3 DAYS(ITS BEEN 3 WEEKS THOUGH) I have slowly got more pain and pinched nerves a muscle spasms.. besides apologizing for not keeping my promise, DAD HAS BEEN SICK………..Thtas why i Havent been here, Dad suffered a minor stroke right before thanksgiving, so of course i came to MASS, i live in Maine, AS SOON AS I HEARD…………HE has since came home from the hospital, he is slowly getting all his memory,functions back, as soon as he gained “HIS NORMAL” he suffered from bleeding of the rectum:(. I know i havent spoke of Dad, but he has a curvature of the spine that’s at a 45 degree angle, so it IS amazing he stands let alone walks, well long story short, hes been struggling with walking for a while now, and also suffers from C.O.P.D. I..just to catch you up quickly………….
TUESDAY NOV 20th,
WED NOV 21rst.
Dad is still very confused and not remembering things and people to well, a lot he talks of is the far past, the good news is the stroke wont leave him with any signs, they said after a week maybe less he will gain his memory and feeling of his face, confusion will get less. he will not suffer any permanent damage, of course he is a high risk for another stroke, and next time he wont be so lucky. but for now WE are all happy of the news.
just an update,
its been 2 WEEKS WED, WHEN I GOT MY FIRST RELIEF OF FIBRO PAIN, IT HAS HIT ME THIS MORNING WITH A TON OF BRICKS AGAIN:( TY TO KELLY AT THE PAIN CARE CLINIC FOR SQUEEZING ME IN TODAY FOR ANOTHER ROUND OF SHOTS A FEW DAYS EARLIER, SO I CAN HAVE A GOOD THANKSGIVING AND VISIT MOM AND DAD IN MASS,:) I SO DON’T MISS FEELING SO BAD AND FOGGY TOO, I THANK GOD AND MY NEW DOCTOR THAT I CAN GET RELIEF, I DON’T KNOW HOW I EVER MANAGED, GOOD DAY ALL.
O M G, ITS 1230 PM AND I DON’T KNOW WHAT TO DO WITH MY SELF, I ALWAYS HAVE FIBRO FOG UNTIL 3 ISH OR MORE, and always out of energy and depressed, AND ITS NOT THERE HAHAHA I ‘M DAMN BORED AND HAVE ENERGY THAT IM NOT SUPPOSE TO USE UNTIL TOMORROW, THE SUN IN SHINNING AND I AM SMILING, IS IT POSSIBLE THIS EARLY? I DID GET A GREAT NIGHTS SLEEP:) MAYBE ITS TIME TO PICK UP THE GUITAR AGAIN, I AM AFRAID TO TRIGGER MY MUSCLES, AND THAT OFTEN DOES IT, SAY A PRAYER BROKEN, LETS BREAK THIS PATTERN:)
WELL Morning NUMBER 2
NO FIBRO FOG🙂 WHAT A BLESSING. WHOOHOO. I do have A slight headache and I do have pain, but it is less in the head and neck that is usually is:)yes the rest of my spine is still the same but again we have a long way to go, I AM JUST HAPPY NOT TO WAKE UP IN TEARS TODAY:) so I WOULD SAY TODAY WILL BE A GOOD DAY, as long as i take another day off of any work. THANK YOU DR. DEFEO, I AM SO GLAD TO BE A PART OF THE PAIN CARE CLINIC.and I do hope we continue to make progress, I HAVE A LOT OF LIFE TO CATCH UP, I know its only the beginning but i am happy to think I have a chance to GET MY LIFE BACK, at least back enough to live just a little. FIBROMYALGIA I WILL KEEP FIGHTING YOU.
Fibromyalgia. here hold a lot of information for those interested in learning a little about Fibromyalgia, whether it is you or a loved one who has it, sometimes a little understanding for either party can go along way, THANK YOU HALFWAYINBETWEENTHEGUTTER
- Fibromyalgia Support (everydayhealth.com)
- Help for Fibromyalgia-Related Fatigue? (everydayhealth.com)
- What Does Fibromyalgia Feel Like? (lifeinthefibrolane.com)
I just wanna drop in and say hello to you all, and that I miss coming here, I have been so sick all summer with this fibro crap, that if I do feel good, the last thing I wanna be is on the computer, lol. and since it hurts to be here to long (don’t have a comply desk, not even a desk really) I havent bothered, however after trying acupuncture, which worked some for me, but haven to go 1x a week to keep up I cant afford to do this anymore, I am going to a pain care clinic soon. THANK GOD, have had 16 xrays done and waiting on more tests, it seems I could have nerve damage in my spinal column which is the pain that has left me crippled for days, anyhow long story short, we are still working on things to get to the root, besides the fibro there is something more wrong in my back:( a wheelchair has allowed me to go to the fair this week, thanks to my friends and mom pushing me all around…
I did just wanna stop in and let you know I am still alive, and give you a quick update, in case you were wondering. keep fighting and ill keep praying for you. GOD BLESS